What's up Nina? Thoughts from a Cystic Fibrosis Survivor & Lung Transplant Recipient

More Nonsense

Well, the nurse called us up and they decided that I did not have psuedomonas. Therefore I did not have to start IV antibiotics, hallelujah! But the staph is there so I am going to be taking oral Zyvox instead which isn't so bad. Th other night I ended up in the ER all night once again because of the totally lame colostomy tube I have in my gut.

I was going to the bathroom and I glanced at the tube and realized that it was about 3 inches further out than it had been and I was pretty worried. I only knew that if it should fall out I might have big problems. Like things leaking inside me that shouldn't be there. So my dad and I get to the ER and end up waiting an hour and a half for a room, ya some emergency. So that made us feel good.

Then we wait forever to see a real doctor, like always, and they have to call a doctor after that. They talked about taking the tube out and I was like oh man I hope so, this would be the greatest day ever. Then they talked to my surgeon and decided it was too dangerous to be removed yet, so they stitched it to my stomach, a very lovely addition to my poor abdomen.. NOT.