So I am horrible friend! I totally, and completely, forgot to tell you guys how cool Jamie is lately. (well like always) I will try and keep it short BUT, she sent a story into the Reader's Digest contest "Share Your Story" and it literally almost instantly became an editors pick. Not only that, its been hangin' on the SECOND PAGE OF THE MOST POPULAR STORIES! That's out of A TON of them! The prize for the contest is having your story published in the Reader's Digest, how cool is that!? There are even cash prizes for the top entries, but who cares, it's the readers digest! Besides that, she also got published in a newspaper article about this contest and her submission. YAY! GO JAMIE! So go vote now! And everyday after that until November 15th, its EASY! Below are the links so you too can check out more of her, and this contests awesome-ness!
- News article!! - The article written about her Reader's Digest contest submission!
- Readers Digest Facebook App - Where you can Vote for her story everyday. Find the story below If you would like to read it! Don't forget to vote!
- http://youtu.be/J8dbN8_TkAk - Jamie's YouTube Video Associated with her amazing lung transplant and story.
"28 Breaths a Minute"
I was born in 1979 with the lung disease Cystic Fibrosis(CF). I was not expected to live past the age of eight. In 2007 CF had destroyed my lungs and I was dying. I was on 6+ liters of Oxygen and my lungs were functioning at 11%. I was denied by almost every transplant center for a double lung transplant because I cultured Cepacia. I didn't give up. We flew 2000 miles to Pittsburgh PA. where I was evaluated by the only center willing. After 5 days of testing my lungs could not continue breathing. My husband chose to put me on a ventilator while the doctors/surgeons decided whether to put me on the transplant list. I was put on the transplant list on 12/07/07. Just three days later on I received the gift of life from my donor. I will celebrate my 4 year transplant anniversary December 2011. I believe the hardest things in life are worth fighting for.
http://youtu.be/J8dbN8_TkAk - Jamie's YouTube Video Associated with her amazing lung transplant and story.
Dobby is the name I gave my Grandma when I was very little. She has always been there for me and been the greatest grandma in the whole world. I could never thank her enough for all that she has taught me, given me, or for all the years she took care of me weather I was healthy or sick.
So HAPPY BIRTHDAY DOBBY!! I love you a ton!!
Of all the Grandma's in the world. That ever there could be. You'll never know how glad I am that God gave you to me.
What could be more precious than a grandmother's special love, she always seems to know the things that we are fondest of. She's always ready with a smile or a loving word of praise; her laughter always brightens up the cloudiest of days She has an understanding heart that encourages and cheers; the love she gives so freely grows deeper with the years. Her wisdom and devotion are blessings from above; nothing could be more precious than a grandmother's special love.
So a friend directed me to read about this amazing lady, who has also had a double lung transplant, she also needed a kidney, but she is SUPER AWESOME so you MUST check her site out! Go to her website/blog here.
Here is a little info about her from her site:
At 6 weeks old, Dottie Lessard was diagnosed with Cystic Fibrosis and doctors told her parents not to expect her to live past 2 years of age. Then, when Dottie reached two, doctors told her parents she would not make it to first grade. Now at 43, Dottie is one ferocious athlete with an insatiable appetite for life and she has every intention of competing in athletics and in life at the highest level possible. She has defied all odds and is proving to the world that transplants do work!
Dottie has won several Gold Medals in the U.S. Transplant Games, carried the Olympic Torch through Boston and has been acclaimed as one of Boston’s Exceptional Women of the Year. Bryant Gumbel of HBO Real Sports featured Dottie on his show after following her for two years while Runner’s World Magazine honored her with its prestigious “Heroes of Running Award”. She has been featured in other sports magazines as a “Top Inspirational Athlete”.
Dottie has also written a book, which I would like to read sometime because it has gotten awesome reviews and sounds like an amazing story, which I have no doubt it is considering her experiences. Here is some more info about Dottie, and her accomplishments.
Dottie considers it a miracle to be alive but of all her accomplishments, Dottie is most proud of her 6-year old son Liam. She is a Life Coach, Entrepreneur, Athlete, inspiration to all she meets, and a published author. Her first book was released with high praise on May 26, 2010 titled “Seven Letters That Saved My Life” (available at www.amazon.com)
At a young 43 years old and living with transplanted lungs for over 16 years, Dottie is called a trailblazer for both the Cystic Fibrosis and Organ Transplant communities and donates much of her time to both.
So go to http://www.dottielessard.com/ to check her out and read more about this amazing lady! She is an inspiration especially to me as a cystic fibrosis patient and double lung transplant recipient since she is outliving the expectations of both and doing incredible things at the same time!
Before you read the post I am linking to, please watch this short video about my friend Jamie (if you have not already), and her fight with Cystic Fibrosis, and her lung transplant. The post below talks about her thoughts now on her post transplant life.
Here are the thoughts Jamie has on post transplant! It is not meant to be depressing or anything like that as she already wrote in her blog, it is just covering some fears that are normal in the mind of a post transplant patient. Here is an excerpt:
Basically I ponder about several things. I will start with kind of an obvious one. 'NOW WHAT?' I may have posted before about this a little but it's always in the back of my mind. I have a dark cloud that always lingers in my mind reminding me that this wonderful transplant life is temporary. I know that's not what I dwell on, but it's the truth. There is NO cure for "chronic rejection" and that honestly can be terrifying. To be honest, I would like to start/have a family. . .but it is a very hard to face the hard reality that I would at some point leave those children with the pain of watching me die. I would leave Bryan heartbroken and a single parent. I am not sure I am ready to do that to those I love. I understand the benefits, the joys, but a lot of pain will also accompany all of it. So NOW WHAT?………..
If you were ever curious as to how people end up with Cystic Fibrosis, and maybe even read about it, and were still left confused. Try reading how Ronnie, of Run, Sickboy, Run explained it, in the most simple words he could. Click the link below to read more.
A little bit about Ronnie. He is 31 and has Cystic Fibrosis. He runs, among other awesome things, and has a website called CysticLife Which is a positive community of CF patients, friends and caregivers where they can share about themselves and ask questions, as well as many other things. Ronnie and his wife are also expecting a little peanut to be running around the house soon.