What's up Nina? Thoughts from a Cystic Fibrosis Survivor & Lung Transplant Recipient

7May/11Off

Things I have done with my New Lungs:

So I thought this sounded like fun. I went through my photos and tried to find some things that I have done since I received my new lungs.

Run Races:

2 miles and 4 miles, more to come! This I was not able to do for years prior to transplant.

Hang out with cool people and eat also lots of food!  :D

Hike:

Love hiking! So does axel. This I was not able to do prior to transplant.

Be Santa's elf and chill with him and Mrs. Clause:

Yes. So awesome I know.

Ride my bike forever:

Whether its 10 miles of hills or 25 miles flat I CAN DO IT! This I was not able to do for a LONG TIME (if ever) prior to transplant.

Walk my dog:

Almost daily as he has the energy of the energizer bunny… This I would not  have  been able to do prior to transplant.

Go on adventures:

Have been on many adventures and have many, many more to come! I went on some VERY awesome adventures before my transplant but I always ended up sick or in the hospital shortly after, that does not happen now!

Snowboarding:

I WAS ABLE TO SNOWBOARD AGAIN!!! Without oxygen! Snowboarded with oxygen for a year (made it a few times) and completely skipped a year before my transplant due to health.

Graffiti Hay Bails:

aka make them look like adorable snowmen, photo taken before I finished. Best idea ever, thinking I probably wouldn't have made it with the oxygen.

Have an oxygen saturation of 100%:

This is just completely amazing. Never before seen in the life of Nina, I hadn't even seen 99 before…

Eat Ice cream!

This was actually my first post-transplant adventure, not even a day after I was released from the hospital, and I WALKED TO TCBY! Probably at least a half mile and it was uphill, just awesome, even though eating ice cream is pretty much all I could do before transplant, it was a huge accomplishment to walk there and eat on my own since I had been on the ventilator for so long.

Walk for 2 Causes!

I participated in the Jingle Bell Walk (2 miles) and a Walk for CF (5k) with over 30 super awesome friends and family members!

There you have it! My totally random things I have done since my transplant list. Hope you had fun reading!

Be an organ donor!  Save someones life!

5Apr/11Off

Dottie Lessard

So a friend directed me to read about this amazing lady, who has also had a double lung transplant, she also needed a kidney, but she is SUPER AWESOME so you MUST check her site out! Go to her website/blog here.

Here is a little info about her from her site:

At 6 weeks old, Dottie Lessard was diagnosed with Cystic Fibrosis and doctors told her parents not to expect her to live past 2 years of age.  Then, when Dottie reached two, doctors told her parents she would not make it to first grade.  Now at 43, Dottie is one ferocious athlete with an insatiable appetite for life and she has every intention of competing  in athletics and in life at the highest level possible. She has defied all odds and is proving to the world that transplants do work!

Dottie has won several Gold Medals in the U.S. Transplant Games, carried the Olympic Torch through Boston and has been acclaimed as one of Boston’s Exceptional Women of the Year.  Bryant Gumbel of HBO Real Sports featured Dottie on his show after following her for two years while Runner’s World Magazine honored her with its prestigious “Heroes of Running Award”.  She has been featured in other sports magazines as a “Top Inspirational Athlete”.

Dottie has also written a book, which I would like to read sometime because it has gotten awesome reviews and sounds like an amazing story, which I have no doubt it is considering her experiences. Here is some more info about Dottie, and her accomplishments.

Dottie considers it a miracle to be alive but of all her accomplishments, Dottie is most proud of her 6-year old son Liam. She is a Life Coach, Entrepreneur, Athlete, inspiration to all she meets, and a published author. Her first book was released with high praise on May 26, 2010 titled “Seven Letters That Saved My Life” (available at www.amazon.com)

At a young 43 years old and living with transplanted lungs for over 16 years, Dottie is called a trailblazer for both the Cystic Fibrosis and Organ Transplant communities and donates much of her time to both.

So go to http://www.dottielessard.com/ to check her out and read more about this amazing lady! She is an inspiration especially to me as a cystic fibrosis patient and double lung transplant recipient since she is outliving the expectations of both and doing incredible things at the same time!

4Apr/11Off

Champions

“Champions aren’t made in the gyms. Champions are made from something they have deep inside them — a desire, a dream, a vision.”


 - Muhammad Ali

31Mar/11Off

P90X

P90X® WORKOUT:

A REVOLUTIONARY HOME FITNESS PROGRAM

In just 90 days, you can get back in shape, or build the body you've always wanted. All you need is a set of dumbbells or resistance bands, a pull-up bar, and about an hour a day. No gym membership required.

My mom has had a set of workout DVD's called P90X for a while now. Its a home fitness program sold by Beachbody. She swears by it and has used it for a few years so I started to slowly use it also. I used to try and do a DVD here and there before my transplant but I usually never made it more than half way through unless I totally skimped on each workout all the way through the dvd. Each DVD is about an hour long and includes usually either upper body only, lower body only, cardio, or some mix of the above (mostly in the later weeks of the plan).

Here are the different DVD's:

  • Chest & Back
  • Plyometrics
  • Shoulders & Arms
  • Yoga X
  • Legs & Back
  • Kenpo X
  • X Stretch
  • Core Synergistics
  • Chest, Shoulders & Triceps
  • Back & Biceps
  • Cardio X
  • Ab Ripper X

First of all I LOVE the arm workouts, as well as anything with weights. Ploymetrics is my personal favorite but it tends to make the next day very difficult (as in getting off of the toilet and trying to walk up or down stairs) I recently just completed the whole first set, Legs & Back I thought was the hardest and made me the most sore post workout!

There are a few different workouts you can choose between but I have stuck with trying to get through the classic version as I like to mix it up (weights/cardio) some versions have more cardio etc etc. For example, this is week 1-3, then 4 (a rest week) of the classic workout.

Weeks 1, 2, and 3

    Day 1 – Chest and Back, plus Ab Ripper X
    Day 2 – Plyometrics
    Day 3 – Shoulders and Arms, Ab Ripper X
    Day 4 – Yoga X
    Day 5 – Legs and Back, Ab Ripper X
    Day 6 – Kenpo X
    Day 7 – Rest or X Stretch
Week 4

    Day 1 – Yoga X
    Day 2 – Core Synergistics
    Day 3 – Kenpo X
    Day 4 – X Stretch
    Day 5 – Core Synergistics
    Day 6 – Yoga X
    Day 7 – Rest or X Stretch

Although you CAN do it any way you want, this plan gives you 3 weeks intense exercise then a week of "rest" (still hard work) which is cardio, yoga, and stretching before you go back to the more intense stuff. And in the later weeks you get to add a lot more of the DVD's into your workout. Which is set up to be "muscle confusion" or whatever they call it.

Strength routines carve out your best body.

Cardio pushes your aerobic capacity to the max.

Core and Yoga build stamina, flexibility, and great abs.

The final thing I have to say, and the only reason I am posting this "review" on my blog is because these workouts are FUN, they keep you MOTIVATED, and most of all, they keep you getting your butt off the couch and working out because you WANT TO DO IT! The other thing, it really does work. You don't need much (pull up bar or bands, free weights or bands, yoga mat, chair, etc, some of the other things can be improvised) You can see it working and of course feel it and I would recommend giving it a shot if you are thinking of a new workout routine, or something to do in the winter when being outside isn't an option. But be ready to spend over an hour a day working out.

20Mar/11Off

Couch to 5k Plan

"Run a 5k in 9 weeks!"

First off: This is not a RUNNING program, because I know that scares some people away, but this is a WALK/RUN program to GET YOU RUNNING in about 9 weeks.

I know I have written about this before. But since I have been using this more recently and ABLE to get into the later workouts I decided to repost it! So! To anyone thinking there is NO WAY they could ever run a 5k (or 30 minutes straight) this is pretty much a fool proof workout plan for doing just that, because I thought the exact same thing... TWICE!

The Couch to 5k Plan

The above link is to the original couch to 5k plan that I have tried to work through on multiple occasions, before transplant, as I was in between doing "okay" and being really really sick for random periods of time. Now that I have a lot easier time breathing I am hoping to just crush this plan!

Today I am on week 6 day 1 of the plan. I do not move on unless I feel really strong in that particular workout. Like week 4 I repeated twice, and week 5 I turned it into almost a 3 week plan giving each exercise its own week. You can preview a few of the exercises below.

Another awesome chart made to tell you exactly when to start and stop running (specifically for treadmill runners) but will work for anyone that wants to train using time (as opposed to distance which is an option in the first training plan). Click here for the treadmill time chart!

But like me, some are a lot slower than others, especially starting out, so time is a really good way to start, its easy to keep track of, and a good goal that you can see as you go (which I am not sure is a good thing or a bad thing). I actually started covering up the clock on my treadmill and using the Couch to 5k app on my ipod, with cues for when to run and walk, so I had no idea how much longer I had to run and it seemed to work wonders for me!

Here is the link to the ipod/iphone app that I use! This app rocks, you can use your own music, even other apps at the same time while it still keep track of your time, as well as still alerts you when to start running and when to start walking. You are even able to use the Pandora app in the background!! (As long as you have one of the newer multitasking devices) But so far it has made my timing a ton easier as I no longer need to stare at the clock!! I wish I had it when I started!!

LASTLY! Here is the link to my post about the 5k races that I completed before my transplant!

Hope you take on the challenge!! (That is if you are currently a couch potato) ;)

10May/10Off

Sleep

I wish I could sleep. I finally see the difference between overdoing it with exercises to keep my lungs healthy and passing out all day. That was a way to keep me alive and keep my lungs clear. AND allow me to be so tired and actually sleep. But I never felt like I was doing enough. I always ran out of energy before I could do something good. I was living by example. I did what I could. I did what I had to to live. To my best ability. After everything had been exhausted. After accepting loosing everything. Even the ability to pee on my own. That is when I learned I did everything wrong.

I never knew how much I needed to share my thoughts to help people. A lot of times in the bible I felt Jesus just lived by example. I felt like that's what God wanted. I felt after I read about Jesus' life more and more he told a lot of stories. The stories that answer all of your questions about life.

I like being underestimated. But I don't like when people treat me like I'm stupid. I like patient people who try to make things easy for everyone to understand. Not only the smart ones. I hate when people think I'm smarter than them. No one person has any less self worth than anyone else. No one is any smarter or dumber, some people you just have to try harder to explain things, and differently. Some people you have to open up to before they will open up to you.

Some people need words. Some need photos. Some need music. Some need videos. I'm going to try and include these all in my blog eventually. But I feel like an idea is not properly conveyed without the use of graphics, art, videos, pictures, sounds, music. The little things. :) be patient. People need sleep!

I like to have fun. :) I expect you might GET more about my life after by learning about me. Thanks for the love. :)

Nina

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