What's up Nina? Thoughts from a Cystic Fibrosis Survivor & Lung Transplant Recipient

28Oct/11Off

My Recent Surgeries

The surgeries went well, or at least I assume since I decided to sleep for 3 days after and I cannot remember seeing any of the doctors. (There is a follow-up soon so no worries) Amongst the 5 incisions from the fundoplication to correct acid reflux, I ended up with 3 more making the total incisions for this operation 8.  Although small, from 5 of them being laperoscopic, my entire chest and abdomen look like World War III considering the scars and incisions from previous surgeries. This MAY be my record, if I don't count the larger incision from my transplant. But it is for sure my record for individual incisions in one surgery.

Anyway, it is safe to say I am port-free and have no way other than my arm/hand to have an IV in for a procedure. So I will avoid that at all costs for sure! My port being GONE is on one side completely insane, since I have needed the thing since I was 3 years old, but the other side is that it's a complete miracle, because I REALLY DO NOT need it right now, at this very moment, or really at all since I haven't used it for almost an entire year. (besides bronchoscopes which the port wasn't really needed)

The port removal took two small incisions, while the spot on my scar that was acting up took one. The transplant surgeons decided to see if they could remove a stitch of some kind holding my ribs together since it might be the culprit of my scars irritation. So far I changed the gauze and everything underneath looked good (steri-strips) sorry for the queasy ones. (photo below) I have never felt so good after surgery before. (not counting the 3 days of semi-unconcious-ness and a 103 degree fever) But eh, that was nothin' lol. Slept right through the worse of it.

Tagged as: , 1 Comment
9Oct/11Off

My Interesting Security “Blanket”

Tegaderm - My interesting security blanket.

I recently had an issue with my scar. The one from my lung transplant incision. It sort of came open in a small-ish area and wasn't very nice looking. It did looked sort of infected to me. Turns out that it wasn't, after the results of a swab came back, that was a relief.

I ended up needing to cover it, with a dressing or something to keep it clean mainly when I showered. So I took out my IV stuff for the first time in many months, about 8. (Mind you my old record was 1 month, for over a year) Trying to put a dressing on the incision and hoping it would help protect it. I'm a bit paranoid when it comes to open wounds, and most other medical things like that. I knew a nice dressing would make me feel better, which also makes the area that needed covering feel better (in my head, I admit it).  So beings the first time, for a  really long time, I have needed to put Tegaderm on my chest area (not far from my port) I realized the scent of Tegaderm makes me feel like everything will be okay. Almost safe from whatever could happen. Sickness, infection, or the like.

It may seem weird but after over 20 years of having a port only inches below my nose, smelling a new dressing over my port that was freshly accessed for another round of IV antibiotics. Which I always just knew would make me feel better in no time. Gave me this idea that it was that smell that meant I would soon feel better. Even after the IV's had decided not to work, and the antibiotics were no match for my bacteria, there was always waking up from surgery with that same smell, knowing I just needed to be fixed or that I just had to recover and I would be on my way. Tegaderm and its accompanied smell was always there.

So with the faint pain, discomfort, worry, a little bit of uncertainty. Unaware of the problem, I cleaned and dressed my scar with gauze and a Tegaderm. That's when I instantly realized how important that large piece of thin adhesive film had been to me throughout my childhood through adulthood with my illness. How it meant so much to the history of my Cystic Fibrosis life, which was my life.

Tagged as: , No Comments
14Jul/10Off

Iv’s

Going back on IV antibiotics. Not so bad since I've been off of them for over a month, I think that's a new record. My Fev1 (lung function) was 23% so obviously I could be better. My oxygen was 90 on 4 liters, not so good. Hope the Iv's work! I will keep you all posted with more health updates if I have em. Thanks for reading! Hope everyone is having a good summer!

Tagged as: 2 Comments