100 Million
I have been meaning to post this awesome story, provided by Donate Life America. On October 11th, 2011 they announced the 100 Millionth Organ, Eye and Tissue Donor Registered in the U.S.
That is so incredible because "The United States can now boast that 100 million Americans — roughly 42 percent of the adult population –are registered as organ, eye and tissue donors in state donor registries." At least I got it up before October was over! These 100 Million people all signed up to donate their organs in the random chance the sudden end of their life could save many other human beings in need. Thank you to the 100 million, because I already was given my second chance from someone just like you. Caring, sharing, and loving. Against all odds.
For the rest of the facts, and the whole story on this amazing achievement click here!
Waiting List Statistics as of October 2011:
- 112,178 Patients Waiting
- 61,767 Multicultural Patients
- 1,746 Pediatric Patients
- 28,665 Organ Transplants Performed in 2010
- 14,510 Organ Donors in 2010
The Power of Two
http://www.thepoweroftwomovie.com/
I recently finished the book "The Power of Two" by Isabel Stenzel Byrnes and Anabel Stenzel. It's a book about a couple of more than amazing twins who both have Cystic Fibrosis and have had miraculous lung transplants that saved their lives. The story is unlike any other I have read or heard about in regard to a double battle of CF and lung transplantation. Other than the fact they are twins, they are not of the usual caucasian background where CF is most common, they lived in a time when they were able to physically meet many other CF people which is rarely allowed today, getting a perspective many of us with CF will never even know of. They tell about their entire life, raw and beautifully sharing stories about their family, personal life, hospital stays, as well as the loss they had to face watching so many friends with Cystic Fibrosis live and pass throughout their years.
For me the book was not only very powerful and informational, mostly about the effect of this disease on people and families as a whole, but more importantly the amount of the story I could personally relate to which made it much more interesting to read and extremely personal. Throughout the book I could be sad, excited, happy, and more than grateful all at the same time of the news and information shared. The twins share many deep thoughts and feelings about life with the disease as well as insight. They share how you can turn a not so perfect situation into a totally awesome story of survival. Many time I read things that made me realize that many, many people needed to read this book, it would give others an understanding of this disease that most have no idea exists. Also the entire read, I knew that my family and friends would love the book, after sharing my life with me during many of the same times Isa and Ana experienced.
I recommend you grab a copy of this if you have ever known anyone with CF or would like to know more about Cystic Fibrosis, the blessing of organ donation, and how Lung Transplants are eventually needed to save the lives of those with end stage CF. You will NOT be disappointed! I know my review-ish paragraphs above on this book do it absolutely NO JUSTICE, so see for yourself! Read this book!
The Power of Two
A Twin Triumph over Cystic Fibrosis
Isabel Stenzel Byrnes and Anabel Stenzel
Stress and Organization
I found out that if you look hard enough. I found out if you accept people for their differences. I found out if you never are too proud or selfish or better than anyone else. If you just try hard for God and the ones you love. If you don't expect anything more. You might find that it feels better than you think.
What I do know is that you HAVE to try to be organized. Stuff that gets out of hand creates stress. Stress takes away from LIFE. Lifes happiness. What I do know is that you HAVE to love someone. Even if just a dog, to love and to talk to, to teach you to trust, to get you to tomorrow to know they know you will always try to take care of them. TOMORROW! That's the only day they want love. And they want you to do what you say. When you say you are going to do it.
I realized love gets lost in stress. The stress of everyday life. The stress of food and work and boredom. I think when you get bored. You loose love. Sometimes you don't even notice. Until you obsess over something else. Until it's gone.
Ya you know the drill. You don't know what you got til it's gone. Cheesy right? That's what I thought. I found out you can't be cheesy ENOUGH when it comes to love. Real love. Don't fool yourself.
Only gods love is real. It's hard it hurts. It doesn't make you feel good. Only becuase yes people aren't God. Yes they make mistakes. Yes you have to understand that. And YES you do have to try. EVERYDAY. Forever!! But don't worry about anything past today. Worry about Getting to tomorrow. But even then. God wants you to leave tomorrow in his hands. No It's not easy. Yes It's scary. But I think it's right.
Nina
Want something?
the more you want the less you need. the more you need the less you love. the less you love the less you live. that want you were saving for just cost you the love in your life. still want it?
But you don’t look sick…
Yo! I wanted to follow up the previous post with a shout out to an awesome site.
Tons of extremely useful information for people struggling with illness as well as those just looking for ideas and tips to managing lifes struggles. There are awesome product reviews as well as tips and ideas for living with an illness of any kind. There are also many travel tips as well! Those of us with travel needs know how that goes! Easier to NOT go! 
anywaysss... Check it out!!
Worry
Jesus basically said that every minute you worry you take a minute off of your life. What if you had minutes left? Wouldn't you stop worrying? Just to be with the people you wanted for a little longer? THAT is the ultimate love. That is Gods love for Jesus. And all we are asked is to be as much like Jesus as we can be. That's it. Nothing more nothing less. He gives us back what he says he will. If you don't doubt. You just can't expect too much too soon. Because with God. Everything is just right. 
Don't you want that love?
Quotes & Things
Celebrate life!
I am in charge of how I feel and today I am choosing happiness.
Life is what happens to you while you are busy making other plans.
Life is too short and unpredictable not to live it exactly as your please.
:)
The trick is to enjoy life. Don’t wish away your days waiting for better ones ahead.
Do more of what makes you happy.
Celebrate everyday moments.
Find Me!
Hey! I go by Nina. I was born with Cystic Fibrosis & was recently fortunate enough to receive a double lung transplant. If you're looking for more info about me, please check out the links in the top menu. There you can read my complete lung transplant story as well as see some videos & photos of mine. Feel free to use the above icons to contact or get to know me through other sites I use or follow! Or just read my recent posts! Thanks for visiting!
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