What's up Nina? Thoughts from a Cystic Fibrosis Survivor & Lung Transplant Recipient

14May/11Off

Paddling Race #36

7May/11Off

Things I have done with my New Lungs:

So I thought this sounded like fun. I went through my photos and tried to find some things that I have done since I received my new lungs.

Run Races:

2 miles and 4 miles, more to come! This I was not able to do for years prior to transplant.

Hang out with cool people and eat also lots of food!  :D

Hike:

Love hiking! So does axel. This I was not able to do prior to transplant.

Be Santa's elf and chill with him and Mrs. Clause:

Yes. So awesome I know.

Ride my bike forever:

Whether its 10 miles of hills or 25 miles flat I CAN DO IT! This I was not able to do for a LONG TIME (if ever) prior to transplant.

Walk my dog:

Almost daily as he has the energy of the energizer bunny… This I would not  have  been able to do prior to transplant.

Go on adventures:

Have been on many adventures and have many, many more to come! I went on some VERY awesome adventures before my transplant but I always ended up sick or in the hospital shortly after, that does not happen now!

Snowboarding:

I WAS ABLE TO SNOWBOARD AGAIN!!! Without oxygen! Snowboarded with oxygen for a year (made it a few times) and completely skipped a year before my transplant due to health.

Graffiti Hay Bails:

aka make them look like adorable snowmen, photo taken before I finished. Best idea ever, thinking I probably wouldn't have made it with the oxygen.

Have an oxygen saturation of 100%:

This is just completely amazing. Never before seen in the life of Nina, I hadn't even seen 99 before…

Eat Ice cream!

This was actually my first post-transplant adventure, not even a day after I was released from the hospital, and I WALKED TO TCBY! Probably at least a half mile and it was uphill, just awesome, even though eating ice cream is pretty much all I could do before transplant, it was a huge accomplishment to walk there and eat on my own since I had been on the ventilator for so long.

Walk for 2 Causes!

I participated in the Jingle Bell Walk (2 miles) and a Walk for CF (5k) with over 30 super awesome friends and family members!

There you have it! My totally random things I have done since my transplant list. Hope you had fun reading!

Be an organ donor!  Save someones life!

22Apr/11Off

My Attempt at Race Photography #28

17Mar/11Off

Runnin’ O’ the Green

After the Honeywagon run (4 miles) I saw another race nearby called Runnin' O' the Green. It looked like it might be more fun for me since it was shorter (only 2 miles). I was super nervous for this one because I really wanted to make it the whole way without walking and in 25 minutes or under.

Well I got a couple of my friends to meet me there, who are awesome, my dad also came, yay! It was monsoon raining while my dad and I registered, but we were stoked at the race shirts.

I picked different clothes from the car as it got closer to race time since the raining has not stopped (just calmed down a bit) and we waited for the race to start.

I started off slow again and about half way I realized it's A LOT harder to run on trail than road (and treadmill). So my legs were not doing as well this day. I stopped and walked for a few minutes and just like the last race tried to speed up once close to the finish line. 26 minutes, not too bad.

Once again my momma was at the finish line to greet me, and I was surprised how not tired I was. I didn't even require a nap that day! Next race goal: no waking for real!!! Oh ya! AND I GOT NEW SHOES!!

15Mar/11Off

First Post-Transplant Race!

Honeywagon Runs

Since I have been training (run/walking) with the Couch to 5K Plan, some friends of ours and my mom were going to run a race near our house. So they thought I should do it as well. I agreed of course.

I admit I was a bit nervous as I had not even gotten halfway through (just starting week 5) of the running plan, and the distance was further than I even planned on training for (4 miles instead of 3.2) Well I went for it, I was less nervous knowing I probably wouldn't make it the whole way without having to walk so I just started off slow and tired to save some energy for the finish line. It seems like it was just before or just after mile 3 that I had to start walking due to my ankle bothering me. But I may have made it almost 3 miles running.

Iwalked for a few minutes and continued running, soon you could see the building which was home to the FINISH LINE!!! I tried to run my fastest but with 100yards to go I thought I might die. I was DONE running, and I just kept going.

I had the idea before I started that it was going to take me 2 hours (lol that was just to make myself feel better) but literally I was guessing 1:20 or 80min. Because first of all I had never ran outside before, and secondly I had been running an 18:45 minute mile on the treadmill.

Well I reached the finish like at 52:26!! That's a 13min mile for 4 miles!! Needless to say I was proud of myself and even MORE thankful for my new lungs, because that right there had been what I had always dreamed of doing while I was laying on the couch being pumped with oxygen dreading the walk to the bathroom which is my house isn't very far away.

Thanks momma & Gina for being cool and thanks Dean & Spener for sticking with me! (Thanks Polly for the pics!)

20Apr/10Off

Fun & War

I think fun is key. I think anytime you are doing something you love and you can feel good about it you are changing the world. You don't have to be any race, any color, any religion, any age, any gender to change the world.

Change. Love. They see none of that. That stuff is all petty nonsense. Until you can figure that out you need to get your priorities in order. You need an ultimate goal. AND YOU NEED to accept that one day. YES! It might disappear. But no. That's not a worthy cause to stop fighting.

This is not life. This is WAR! Yes you are going to loose shit. Yes you are going to get knocked down fighting! For the ones you love! But you can't get careless. You can't get too comfortable. You can't get too controlling. You have to accept it might ALL disappear. That's when you realize. This means War.

Whenever you loose. Change. Change to something fun. Something different. Productive. And good! To your best ability. That's all we are asked.