Cystic Fibrosis Foundation Great Strides
Going to walk for Great Strides for the first time this weekend! I was invited by some awesome friends so we will have a good time for sure! Be sure to click the link below to donate money to our team and to a GREAT CAUSE! As it will help with treatment and hopefully ultimately a cure for Cystic Fibrosis so that many other children, teens, young adults, and now adults (thanks to donation money and research) won't have to go through what my brother and I, as well as many friends I've met, have gone through in their lifetime with Cystic Fibrosis!
Click here to see the teams donation page!
GREAT STRIDES is the Cystic Fibrosis Foundation's largest and most successful national fundraising event. This year, I'm walking in the GREAT STRIDES walk at the 2011 Seattle - Seattle Center, Mural Amphitheatre walk on 05/22/2011. Please help me meet my fundraising goal of $500.00 by sponsoring me. Your generous gift will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.
Things I have done with my New Lungs:
So I thought this sounded like fun. I went through my photos and tried to find some things that I have done since I received my new lungs.
Run Races:
2 miles and 4 miles, more to come! This I was not able to do for years prior to transplant.
Hang out with cool people and eat also lots of food!
Hike:
Love hiking! So does axel. This I was not able to do prior to transplant.
Be Santa's elf and chill with him and Mrs. Clause:
Yes. So awesome I know.
Ride my bike forever:
Whether its 10 miles of hills or 25 miles flat I CAN DO IT! This I was not able to do for a LONG TIME (if ever) prior to transplant.
Walk my dog:
Almost daily as he has the energy of the energizer bunny… This I would not have been able to do prior to transplant.
Go on adventures:
Have been on many adventures and have many, many more to come! I went on some VERY awesome adventures before my transplant but I always ended up sick or in the hospital shortly after, that does not happen now!
Snowboarding:
I WAS ABLE TO SNOWBOARD AGAIN!!! Without oxygen! Snowboarded with oxygen for a year (made it a few times) and completely skipped a year before my transplant due to health.
Graffiti Hay Bails:
aka make them look like adorable snowmen, photo taken before I finished. Best idea ever, thinking I probably wouldn't have made it with the oxygen.
Have an oxygen saturation of 100%:
This is just completely amazing. Never before seen in the life of Nina, I hadn't even seen 99 before…
Eat Ice cream!
This was actually my first post-transplant adventure, not even a day after I was released from the hospital, and I WALKED TO TCBY! Probably at least a half mile and it was uphill, just awesome, even though eating ice cream is pretty much all I could do before transplant, it was a huge accomplishment to walk there and eat on my own since I had been on the ventilator for so long.
Walk for 2 Causes!
I participated in the Jingle Bell Walk (2 miles) and a Walk for CF (5k) with over 30 super awesome friends and family members!
There you have it! My totally random things I have done since my transplant list. Hope you had fun reading!
Be an organ donor! Save someones life!
Couch to 5k Plan
"Run a 5k in 9 weeks!"
First off: This is not a RUNNING program, because I know that scares some people away, but this is a WALK/RUN program to GET YOU RUNNING in about 9 weeks.
I know I have written about this before. But since I have been using this more recently and ABLE to get into the later workouts I decided to repost it! So! To anyone thinking there is NO WAY they could ever run a 5k (or 30 minutes straight) this is pretty much a fool proof workout plan for doing just that, because I thought the exact same thing... TWICE!
The above link is to the original couch to 5k plan that I have tried to work through on multiple occasions, before transplant, as I was in between doing "okay" and being really really sick for random periods of time. Now that I have a lot easier time breathing I am hoping to just crush this plan!
Today I am on week 6 day 1 of the plan. I do not move on unless I feel really strong in that particular workout. Like week 4 I repeated twice, and week 5 I turned it into almost a 3 week plan giving each exercise its own week. You can preview a few of the exercises below.
Another awesome chart made to tell you exactly when to start and stop running (specifically for treadmill runners) but will work for anyone that wants to train using time (as opposed to distance which is an option in the first training plan). Click here for the treadmill time chart!
But like me, some are a lot slower than others, especially starting out, so time is a really good way to start, its easy to keep track of, and a good goal that you can see as you go (which I am not sure is a good thing or a bad thing). I actually started covering up the clock on my treadmill and using the Couch to 5k app on my ipod, with cues for when to run and walk, so I had no idea how much longer I had to run and it seemed to work wonders for me!
Here is the link to the ipod/iphone app that I use! This app rocks, you can use your own music, even other apps at the same time while it still keep track of your time, as well as still alerts you when to start running and when to start walking. You are even able to use the Pandora app in the background!! (As long as you have one of the newer multitasking devices) But so far it has made my timing a ton easier as I no longer need to stare at the clock!! I wish I had it when I started!!
LASTLY! Here is the link to my post about the 5k races that I completed before my transplant!
Hope you take on the challenge!! (That is if you are currently a couch potato)
Out Run CF
A few awesome organizations, The RocK CF Foundation and CysticLife have teamed up to create a super awesome event all over the world and also a super awesome event in Michigan! Here is the race info, the link to the active.com registration (even though a bit late) and also the info for the Rivers Half Marathon & 5k.
Date: Sunday, March 20, 2011
Link to the "Virtual Run" Where people all over the world will be running for the same cause!!
Address: All over the world - Wherever You Want to Run!
Brief Description: The RocK CF Foundation and CysticLife are joining forces to Out Run Cystic Fibrosis and you are invited to help! If you are not running the Rock CF Rivers Half Marathon or 5K March 20 on Grosse Ile, MI but you still want run with us, this is YOUR race! On March 20 you will find a route or race by your house, lace up your joggers and hit the road in your Out Run CF shirt. You are doing this for yourself and you are doing this for the 70,000 people worldwide living with cystic fibrosis.
And here is a link to the Race that is actually taking place!!
My Town
Here in my town I have gathered some friends and family and friends of friends, as well as kids and dogs to get together on sunday to Outrun (and walk) CF! We received our shirts (super awesome at that) and are all prepared for the 5k I have mapped out for us. After sunday I will update you on group and how the Outrun CF Virtual Run went. And yes there will be photos of course!!!!
Nina Walks!
Nina walks! Tubes and all! Here's a picture from Momma. They got Nina up on her own two feet. Or rather they let her get up. If you know Nina you know that keeping her down is pretty much impossible. ![]()


















































